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Genetic discrimination as another shadow of biotechnology
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생명과학기술의 또 다른 그늘 : 유전자차별

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Type
Academic journal
Author
Kim, Sang Hyun (연세대학교)
Journal
Korean Association Of Science And Technology Studies Journal of Science & Technology Studies Vol.14 No.1 (WN.27) KCI Accredited Journals
Published
2014.6
Pages
59 - 85 (28page)

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Genetic discrimination as another shadow of biotechnology
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Abstract· Keywords

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This study aims to highlight the social aspects of genetic discrimination as another shadow that biotechnology can influence on social life. To do so, the definition of “genetic discrimination” and three perspectives (exceptionalism, expressivism, and human right discourse) were reviewed. In addition, the Genetic Information Nondiscrimination Act (GINA) of the United States and the Bioethics and Safety Act of Korea were analyzed. Several social implications for establishing the research and policies of genetic discrimination based on the existing research results of perceived genetic discrimination (the experiences, fears, and coping strategies of genetic discrimination) were suggested. These included public consensus on the definition of genetic discrimination and emphasis on a human rights approach against genetic discrimination; concerns regarding genetic discrimination in both the personal and public domains; raising the consciousness of both health care providers and the public regarding genetic discrimination; and developing psycho-social coping strategies for decreasing the fear of discrimination of asymptomatic people (hereditary carriers).
#유전자차별 #인권 #예외주의 #유전자차별의 두려움 #ELSI #Genetic discrimination #Human right #Exceptionalism #Fear of discrimination

Contents

1. 서론
2. 기본개념
3. 유전자차별에 대한 시각들: 예외주의, 표현주의, 인권적 담론
4. 유전자차별에 대한 규제
5. 유전자차별에 대한 인식
6. 결론 및 제안
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UCI(KEPA) : I410-ECN-0101-2015-500-001669601