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논문 기본 정보

자료유형
학술저널
저자정보
김보현 (국립암센터) 윤이화 (국립암센터) 이정훈 (서울대학교병원) 홍근 (이화여자대학교) 박준용 (연세대학교) 심주현 (서울아산병원) 김은양 (Division of Cancer Registration and Surveillance, National Cancer Control Institute, National Cancer Center, Goyang) 공현주 (국립암센터) 정규원 (국립암센터) 임영석 (울산대학교)
저널정보
대한간암학회 Journal of Liver Cancer Journal of Liver Cancer 제24권 제1호
발행연도
2024.3
수록면
57 - 61 (5page)
DOI
10.17998/jlc.2024.03.03

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Hepatocellular carcinoma (HCC) presents a substantial public health challenge in South Korea as evidenced by 10,565 new cases annually (incidence rate of 30 per 100,000 individuals), in 2020. Cancer registries play a crucial role in gathering data on incidence, disease attributes, etiology, treatment modalities, outcomes, and informing health policies. The effectiveness of a registry depends on the completeness and accuracy of data. Established in 1999 by the Ministry of Health and Welfare, the Korea Central Cancer Registry (KCCR) is a comprehensive, legally mandated, nationwide registry that captures nearly all incidence and survival data for major cancers, including HCC, in Korea. However, detailed information on cancer staging, specific characteristics, and treatments is lacking. To address this gap, the KCCR, in partnership with the Korean Liver Cancer Association (KLCA), has implemented a systematic approach to collect detailed data on HCC since 2010. This involved random sampling of 10-15% of all new HCC cases diagnosed since 2003. The registry process encompassed four stages: random case selection, meticulous data extraction by trained personnel, expert validation, anonymization of personal data, and data dissemination for research purposes. This random sampling strategy mitigates the biases associated with voluntary reporting and aligns with stringent privacy regulations. This innovative approach positions the KCCR and KLCA as foundations for advancing cancer control and shaping health policies in South Korea.

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