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A Study on Caregiving Burden and Life Satisfaction among Parents of Young Adults with Developmental Disabilities
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성인 발달장애 자녀를 둔 부모의 돌봄부담과 삶의 만족도에 관한 연구

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Type
Academic journal
Author
이은진 (연세대학교 사회복지연구소) Han, Sangyoon (세명대학교 사회복지학과)
Journal
한국장애인평생교육복지학회 장애인평생교육복지연구 장애인평생교육복지연구 제10권 제1호 KCI Candidated Journals
Published
2024.3
Pages
165 - 186 (22page)

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A Study on Caregiving Burden and Life Satisfaction among Parents of Young Adults with Developmental Disabilities
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This study focuses on the caregiving burden and life satisfaction of parents caring for young adult children with developmental disabilities. We utilized data from the‘2020 Survey on Work and Life Survey for Developmental Disabilities’conducted by the Ministry of Employment and Labor and the Korea Employment Agency for the Disabled, the study targets 1,518 parents cohabitating with developmental disability children aged 19 to under 40. The analysis was conducted using SPSS and the PROCESS macro, focusing on multiple mediation effects and bootstrapping for validation. The study's main findings are as follows: First, higher levels of challenging behavior and increased caregiving hours for young adults with developmental disabilities positively impacted the parents' caregiving burden, whereas a greater desire for independence among these young adults negatively impacted it. Secondly, these factors (challenging behavior, caregiving hours, and desire for independence) significantly influence life satisfaction both directly and indirectly through caregiving burden, confirming the presence of partial mediation effects. Based on these findings, the study recommends enhancing support and education to address challenging behaviors in young adults with developmental disabilities and developing effective, concrete strategies for daytime activity services. Additionally, the study discusses ways to improve caregiving burden and life satisfaction for parents through life planning support considering the life cycle and characteristics of individuals with developmental disabilities and expanding service interventions for families with developmental disability children.

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