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학술저널
저자정보
김영선 (서울대학교병원) 정성애 (이화여자대학교) 이강문 (가톨릭대학교) 박수정 (연세대학교) 김태오 (인제대학교) 최창환 (중앙대학교) 김현건 (순천향대학교) 문원 (고신대학교) 문창모 (이화여자대학교) 송혜경 (이화여자대학교) Soo-Young Na (Jeju National University School of Medicine) 양석균 (울산대학교)
저널정보
대한장연구학회 Intestinal research Intestinal research Vol.15 No.3
발행연도
2017.1
수록면
338 - 344 (7page)

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Background/Aims: Inflammatory bowel disease (IBD) is a chronic disabling gastrointestinal disorder that diminishes thequality of life of the affected individuals. Limited data are available regarding the impact of IBD on the daily life of Koreans. Methods: Self-administered, computer-aided, internet-based questionnaires were distributed to members of a Korean patientorganization for IBD from March to April 2013, by the Korean Association for the Study of Intestinal Diseases. Results: A totalof 599 patients with IBD (387 with Crohn’s disease [CD] and 212 with ulcerative colitis [UC]) were enrolled. The majority of patients(81%) expressed feelings of fatigue, weakness, and being worn out in their daily lives during times of flare; this percentagewas reduced to 61% during remission. Respondents were absent from work or school for an average period of 18 days becauseof illness, within the first 6 months; the majority of respondents (64%) felt stressed about their absence. Forty-six percent of therespondents reported having received unfair comments at work, or having suffered discrimination. Forty-seven percent of therespondents felt that IBD had negatively affected their income and earnings. Compared with patients with UC, those with CDreported a more frequent negative impact of IBD on work, or more economic burden. More than half of the respondents (61%)reported that IBD had prevented them from making or keeping friends. Conclusions: IBD significantly impacts daily life, includingwork, education, and social relationships. Treatment that addresses the full spectrum of life of a patient would be moreeffective.

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